References

 

Internet

  • CAPC - Center to Advance Palliative Care: www.capc.org - material and references about Palliative Care in general
  • National Hospice & Palliative Care Organization: www.nhpco.org - information about hospices and hospice care in the USA
  • AAHPM - American Academy of Hospice and Palliative Medicine: www.aahpm.org
  • Parents Wish: www.Parentswish.com - a ‘must-see’ website with a slide show of parents telling their adult children what they want them to know about aging and letting them die when it’s time
  • The One Slide Project: www.engagewithgrace.org -  a “single slide” of five points to guide families in discussing end-of-life issues.
  • EPEC – Education in Palliative and End-of-life Care: www.epec.net - the organization that teaches a standardized curriculum in EOLC across the country, primarily for doctors but also for any other health care provider
  • ELNEC - End of Life Nursing Education Consortium: www.aacn.nche.edu/elnec/
  • Hospice of the Shoals: www.hospiceoftheshoals.org - information about our local not-for-profit hospice and hospices in general
  • Eliza Coffee Memorial Hospital: www.chgroup.org - the hospital where our Palliative Care Service is located
  • Patient Decision Aids:  http://www.npc.nhs.uk/patient_decision_aids/pda.php - A great website when making decisions about various treatments; it compares the benefits and the risks of a specific drug or procedure, using understandable drawings/graphs.
  • Advance Directive Information – a great website about Advance Directives [Living Wills] with assistance in completing one. www.prepareforyourcare.org
  • Fast Facts - peer-reviewed, one-page outlines of key information on important end-of-life clinical topics for educators and clinicians.
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Books

  • Hard Choices for Loving People: www.hardchoices.com - where you can order this booklet about making difficult choices as the end of life approaches – excellent
  • Byock, Ira.  Dying Well: peace and possibilities at the end of life.  Berkley 1997.
  • Kiernan, Stephen.  Last Rights:  rescuing the end of life from the medical system. St. Martins 2006.
  • Kuhl, David.  What Dying People Want:  practical wisdom for end of life.  PublicAffairs 2002.
  • His Holiness the Dalai Lama.   Advice on Dying, and living a better life.  Atria 2002.
  • Kubler-Ross, Elizabeth.  Questions & Answers on Death and Dying.  Touchstone 1974.
  • Maggie Callanan & Patricia Kelley.  Final Gifts: Understanding the Special Awareness, Needs, and Communications of the Dying.  Bantam 1997
  • Twycross R, Wilcock A. Editors-in-Chief.  Hospice and Palliative Care Formulary USA.  2nd edition 2008. Palliativedrugs.com ltd.
  • Schneiderman L. Embracing our Mortality:  Hard Choices in an Age of Medical Miracles. 2008 Oxford.
  • Cassell E.  The Nature of Suffering and the Goals of Medicine.  2004 2nd edition.  Oxford.
  • Lown B.  The Lost Art of Healing: Practicing Compassion in Medicine.  1999. Ballentiner.
  • Davis-Floyd R, St.John G.  From Doctor to Healer:  The Transformative Journey.  1998. Rutgers.
  • Webb M.  The Good Death: The New American Search to Reshape the End-of-life. 1997. Bantam.
  • Williams-Murphy M, Murphy K. It's OK To Die. 2011 MKN



Understanding & Calculating Risks for Diseases & their Treatments

  • Framingham cardiovascular risk calculator – an on-line personal calculator to determine your risk of heart attack or stroke
  • The Paling Perspective Scale – helps put various risks in perspective
  • Simple Tools for Understanding Risks: From Innumeracy to Insight.  G.Gigerenzer. BMJ 2003. – excellent review of understanding risk and benefits of treatments
  • Gigerenzer G.  Calculated Risks.  Simon & Shuster. 2002. – excellent book explaining risks, benefits,  and risk terminology related to medical tests and treatments.
  • Bandolier: Evidence Based Thinking About Healthcare:  http://www.medicine.ox.ac.uk/bandolier/ - great website from Oxford University offering evidence-based information and summaries on healthcare.